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What I Wish People Understood About Hypothyroidism

What I wish People Understood About Hypothyroidism

The thyroid is one of the most influential organs in our entire body. Unsurprisingly, dysfunction and diseases of the thyroid, specifically hypothyroidism, can cause serious disruption while also triggering a notable decline in overall wellness. Unfortunately, despite its significant effect on bodily function many are not familiar with the main qualities and real-life impact of hypothyroidism. 

To raise awareness of hypothyroidism and thyroid disease in general, we asked our Facebook community to share the one thing they wished more people understood about hypothyroidism. Below are some of their responses.Hypothyroidism runs the show in your body. It influences everything including body temperature, mood, energy level and more.

  • There is a serious lack of medical care and attention given to hypothyroidism.
  • Hypothyroidism comes with endless fatigue that is unabated by rest, which can make everyday life a challenge.
  • People with thyroid disease need a full thyroid panel and patient-specific treatment to get better.
  • Regardless of diet or activity level, hypothyroidism can cause significant weight gain and make it incredibly difficult to lose weight.
  • The feelings of fatigue and exhaustion are real!
  • Even if a thyroid patient appears normal on the outside, it is likely that they are struggling with a whole host of unseen symptoms.
  • Hashimoto’s and hypothyroidism have many symptoms that can make you feel different from one minute to the next.
  • It is difficult for non-thyroid patients to fully understand the experience of living with thyroid disease.
  • It’s important to listen to those who are suffering from thyroid disease.
  • Thyroid patients often struggle with memory issues so be patient with them if they forget or need reminders.
  • We are not lazy.
  • A thyroid patient may feel okay one day and be entirely debilitated the following day.
  • The broader medical community is not well-equipped to treat thyroid disease. Individual research and finding a knowledgeable thyroid expert are essential for proper care.
  • Test results do not fully describe how I am doing or feeling. 
  • Caring for a thyroid patient is challenging because of the complexity of the condition and the erratic nature of symptoms.
  • Thyroid disease causes a lot of physical and mental damage.
  • Thyroid disease is highly individualized so my symptoms may not be the same as someone else’s.
  • Thyroid care has not seen significant improvement for multiple decades.
  • Many people with thyroid disease struggle to make it through the day even if they appear to be functioning normally.
  • Weight gain isn’t the only problem.
  • Symptoms of hypothyroidism often remain even after being treated.
  • Even if you can’t see my pain and exhaustion that doesn’t mean they’re not there. 
  • Stress and negative relationships can cause flareups that makes you feel lifeless.
  • Dietary decisions like being gluten free are often not a “choice” but a necessity.
  • Most doctors do not have the expertise or information they need to properly treat hypothyroidism.
  • Some patients may respond well to thyroid medications, but it may not work at all for others.
  • Hypothyroidism is a serious condition that can have a domino effect throughout the body.
  • Standardized or normal testing ranges are wildly inaccurate and are ineffective for diagnosing thyroid disease. 
  • It’s not our fault!

Thyroid patients crave to be heard and understood. Hopefully by sharing some of their comments and insights, thyroid disease and the challenges facing thyroid patients can be better appreciated.

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Guest

Awesome post! Keep up the great work! :)

Michelle
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Michelle

Amen to that!

Sherry Ann
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Sherry Ann

Yes, yes. This is so spot-on. Having Hypothyroidism in today’s medical community feels like it’s our problem, and as long as you take your medicine and labs are normal you should be normal… But as we all know it doesn’t work that way for most of us. Hypothyroidism is a very complex disease and it does a lot of damage to our bodies. I hope the medical community will understand that hypothyroidism is a very serious disease even if you take the meds and labs are normal, there still is a lot of damage going on…I have suffered so much… Read more »

Mary
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Mary

Well said Sherry Ann. I have also been struggling since my thyroid and parathyroid
Removal. It has taken 18 months to finally get my meds somewhat controlled , and I have an understanding Endo Dr. but still I am not totally my old self. Wonder actually if I ever will. I keep reporting symptoms and asking for adjustments, but it seems to take forever to see any improvement. Wishing you wellness and don’t be afraid to shop around for a good Endo and try different doses, compounding etc till you feel better!
Good luck fellow sufferer…..

GVLP
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GVLP

I understand your feelings. The problem is also friends or family who do not understand either why you are “different or difficult at times”. I also have fibromyalgia and some doctors say it does not exist. The research for thyroid problems is null. It is a widespread disease but no one cares to pursue or make more research for it. I am sick and tired of doctors telling me that I am within the range therefore ok. If they had the problem they would not say that. I wonder if one day someone will have some answers. Absolutely depressing! Good… Read more »

GVL
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GVL

My regular doctor thinks he knows about hypothyroidism and if my TSH is somewhere in between the scale, high or low, he tells me I am fine, when I am not. Thankfully I go to a specialist who is not the best but is more observant. Are there any good thyroid specialists out there?

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