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Life Without a Thyroid

Thyroidectomy - No Thyroid Gland

The thyroid gland is an important element or one’s overall health. Hormones produced by the thyroid influence nearly every cell in the body. Therefore, this gland impacts one’s metabolism, stress response, brain function, and more. Because the thyroid is responsible for regulating so many bodily functions and systems it may be difficult to believe that one can function properly without one. Although it can be challenging, those without a thyroid can live healthy lives through proper treatment and support.

What Happened to the Thyroid?

There are several reasons one may not have a thyroid. Individual situations influence the impact of not having a thyroid. Each person and their situation is unique and should be treated with that in mind.

Congenital Hypothyroidism:

In rare cases, the body may not produce a functional thyroid. This means that a person may be born with a malformed or non-functional thyroid gland or simply not have one at all. Situations such as these fall into the category of congenital hypothyroidism. In the United States tests are conducted on newborns to confirm the presence of a functioning thyroid gland. If doctors recognize that the child has congenital hypothyroidism, the newborn is immediately enrolled in hormone replacement treatment. In addition to helping maintain bodily function in adults, optimizing thyroid hormones in children helps combat inhibited growth, lethargy, and delayed mental and physical development.

Thyroidectomy:

Another reason one may not have a thyroid is that it was surgically removed via thyroidectomy. This procedure consists of removing most or all the thyroid. Such an action can result in one experiencing a severe shift in symptoms relating to hypothyroidism. There are several reasons one may have their thyroid removed.

A thyroidectomy is most frequently done when one has been diagnosed with thyroid cancer. Removal may also be suggested to a patient exhibiting inconclusive thyroid nodule biopsies. In such a situation, it is difficult to fully discount the presence of thyroid cancer depending on other various factors, a thyroidectomy may be the safest course of action.

Goiter, also known as an enlarged thyroid, or the presence of multiple thyroid nodules may prompt a thyroidectomy. In addition to being cosmetically unappealing, thyroid nodules may cause one to have trouble breathing or swallowing. Removal of the thyroid can resolve this issue but it is an irreversible action which should be completed only after careful consideration.

If conditions such as Graves’ Disease (the leading cause of hyperthyroidism) and Hashimoto’s Thyroiditis become severe, a physician may suggest thyroidectomy. Although these conditions are classified as autoimmune disorders, they are highly associated with thyroid dysfunction and hormonal issues. Usually surgical removal of the thyroid is only recommended after a patient is treated with all other available options. However, several other countries promote this procedure more than the United States.

Hypothyroidism and the Thyroid

Those without a thyroid may feel that there is a severe lack of information regarding their condition. However, with increased prevalence of thyroid awareness and greater study conducted on hypothyroidism there is actually a great deal of information regarding their situation.

When one’s thyroid is unable to produce adequate levels of thyroid hormones needed for proper bodily function, the individual is diagnosed with hypothyroidism. If a person is lacking a thyroid, there is no gland present to produce the necessary hormones. Therefore, they are considered hypothyroid. Regardless if a hypothyroid patient has their thyroid gland or not, the condition differs little.

Hypothyroidism promotes a wide range of symptoms that are frequently misconstrued as being caused by other conditions. Hypothyroid patients with or without a thyroid gland will likely experience some or all the following symptoms:

Although few differences exist when contrasting hypothyroidism with or without the thyroid gland there are some notable differences that are important to understand.

Hypothyroidism Without a Thyroid

Those with hypothyroidism are frequently directed to avoid substances that slow thyroid function. However, if one is without a thyroid there is little need to be concerned about this because it will have no impact on their non-existent thyroid. Therefore, those lacking a thyroid can be more liberal with their diet. However, as with anyone undergoing hormone replacement treatment, it is important not to overconsume soy. When there is an overabundance of soy in one’s system, it can negatively impact absorption of thyroid hormone. This can negatively impact the effectiveness of one’s thyroid medications.

Without a thyroid, the body cannot produce the critical thyroid hormones T4 and T3. Furthermore, conversion of T4 into T3 primarily takes place in the thyroid (conversion can occur in the peripheral tissues but it is not nearly as efficient). Without a thyroid gland, one will almost assuredly be T3 deficient. For this reason, it is important for hypothyroid patients without a thyroid to be prescribed treatments that include T3 in addition to T4.

Those diagnosed with hypothyroidism frequently must have their levels evaluated and have their medications appropriately adjusted to regulate their thyroid hormones. This is because the thyroid’s function can shift irregularly. However, when one is without a thyroid, there is little fluctuation in their thyroid levels because it is supplied from exterior sources. Those without a thyroid can essentially discount the variability of thyroid function and fluctuations. Therefore, optimization and maintenance of hormone levels may be easier.

Living on Without a Thyroid

Life without a thyroid is possible! Although it may seem like those without a thyroid have been forgotten by the medical community that is not the case. Those without a thyroid are considered hypothyroid. Most information regarding the condition pertains to both persons with and without a thyroid gland. However, it is important to recognize the important differences such as dietary variance, a need for T3 medication and fewer fluctuations in thyroid levels. With proper medical assistance and greater knowledge about hypothyroidism, one can live a fulfilling life even if they don’t have a thyroid.

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Vonda
Guest

So what tests should I have every year without a thyroid? Also what are the usual T3 meds that might be prescribed? In your article you mentioned a food variance. Can you explain what foods should be avoided?

Cathe Rosenfeldt
Guest
Cathe Rosenfeldt

Cruciferous greens should be eaten in small quantities. Soy should not be consumed for several hours (and then very sparingly) after taking your medication and you should always wait at least one hour before eating anything. As with any other hormone, it is best to try and take your thyroid medications at the same time every day. Also, wait at least 4 hours after taking your medication before taking anything with calcium in it.

Adriana
Guest
Adriana

Should avoid soya when the thyroid has been removed for a good absortion of hormones

Eunice Achieng Oluoch
Guest
Eunice Achieng Oluoch

Thank you so much for this wonderful article. This is exactly what I needed! I suffered from goitre n later had the whole of my thyroid gland removed. I was later put on levothyroxine but the hormones have never balanced. I know am far (in Kenya) from u guys but would highly appreciate if u accept m in this family. My life without thyroid for over a decade now has been a nightmare. Blessings

Hannah
Guest
Hannah

Hi Eunice, I am 27 and have been living without a thyroid for 9 years. No one has been able to successfully regulate my medication yet, I have also been experiencing this nightmare. You are not alone, the more people I talk about it, the more people I meet with thyroid issues. I have been on Armour, Levoxyl, Levothyroxine, but nothing is as stable as Synthroid. It’s not the solution but it’s a start to living a more normal life. Synthroid has the most accurate hormone levels from batch to batch, ask your doctor about it. I hope that you… Read more »

Charmaine
Guest
Charmaine

Hannah, Synthroid/Levothyroxine) actually has a history of problems with being inconsistent that is well documented. If your doctor told you otherwise, then s/he needs to be made aware that Synthroid/Levo does not merit such accolades. “The history of potency failures…indicates that Synthroid has not been reliably potent and stable.”– United States Food and Drug Administration Letter to Synthroid Manufacturer, Knoll Pharmaceuticals, April 26, 2001 You can read more here: https://www.thyroid-info.com/articles/synthroidproblems.htm Hypothyroidism was first treated with a T4/T3 natural product made from porcine or bovine thyroid hormone. It usually works wonders for those who are not nutritionally sound (as it takes… Read more »

Danita Lynette
Guest
Danita Lynette

Levothyroxine isn’t stable? Levothyroxine and synthroid are in the same boat? That may be why I was switched over from synthroid to levothyroxine, but I was a child at the time so I wasn’t aware. I’ve informed my primary care doctors that on levothyroxine I’m still struggling and want to give up, but their solution is to increase the dose. With a new or preexisting condition- a gluten intolerance…I’ve just not trusted going to a primary. I’ve just accepted and tried to cope with lifestyle changes as best I can…but I still have periods where I’m down and can’t get… Read more »

Domonique
Guest
Domonique

Synthroid never worked for me. I used to take armour until the ingredients were shifted and inconsistent. Now I’m taking Nature throid which worked for a while but now after about a year or so I’m experiencing tons of hair loss. I had a total thyroidectomy in 2009 so I’m stuck for life. I can definitely agree that there needs to be more thyroid awareness and studies.

Mary Penn
Guest
Mary Penn

Hannah,

I take Synthroid, and I am doing well. I keep reading and hearing people say that you must take T3. Do I need to take it, and what should my T3 levels be without a thyroid?

BattyCancer
Guest
BattyCancer

Hannah,
Could other prescriptions that you take be interferring with your Synthyroid ? I had a hard time dealing with all the added chemicals in synthyroid especially the colored pills I would get massive welts.

Bobbie Ingersoll
Guest
Bobbie Ingersoll

Hi, I hope to join this group. I have been living without a thyroid for 16 yrs due to Graves’ Disease and subsequent RAI. Aside from noticing stability in name brand (Synthroid) Levothyroxine, have you also noticed any of your most bothersome symptoms abate? I often wonder how many symptoms are from variable potency stability issues and how many are from excipients, of which Synthroid has many.

Danita Lynette
Guest
Danita Lynette

Hello, Hannah. I’m glad to read about you and your journey. I’m 27 today. I’ve lived without a thyroid since I was 8 and my story is the same as yours. I’m still being regulated. I’ve tried many times to inform my primary care doctors of no change in my condition, but it is met with the same solution- increase the dose. I also have a gluten intolerance. I am taking levothyroxine. I used to take synthroid and I don’t recall having problems until I was switched to levothyroxine at age 14. Thank you for sharing.

Kathy
Guest
Kathy

Do you see an endocrinologist? The thyroid gland is within their specialty. My thyroid was removed when I was 21. I’ve been taking Sythroid or Levothyroxin ever since. I’m almost 70 now. I have lived a very normal life. Good marriage, career and family. I’m just know starting to see some damaging affects on my kidney function. Seeing my endocrinologist soon.

Connie B
Guest
Connie B

I am living without a thyroid for 25 years surgical removal in 1994 as it was completely wrapped around my esophagus and choking me. I read the book “Stop the Thyroid Madness” and it changed my life. Synthroid did not work for me as my body did not convert the T-4 to T-3. I kept gaining weight, eating very little and no doctor would help me except to say it was all diet related and I knew it was not. The doctors are still working with information that is over 40 years old. You have to be your own advocate.… Read more »

Annette
Guest

What do you mean by nightmare?

Jazmin lee
Guest
Jazmin lee

Ask the doctor to prescribe synthroid which is much better than levothyroxine. Synthroid is the original while levothyroxine is the generic. Since, I have read many comments in favor of synthroid I asked my doctor for synthroid and I am feeling much better.

Danita Lynette
Guest
Danita Lynette

Hello, Eunice. I’m Danita. Thank you for sharing! I had my thyroid removed when I was 8 yo. I have struggled for years on heart medication, synthroid, and levothyroxine. I am now 27 today. I’m still trying to balance life. I found out last year I have a gluten intolerance and may have resulted because I don’t have a thyroid gland. Primary care doctors are still learning effective treatment for the individual. It is imperative to stay on with a primary as well as an endocrinologist. I prefer Nurse practitioners over primary doctors because they’ve been the ones more knowledgeable… Read more »

Deb Pearl
Guest

I met someone this weekend who said that they didn’t have a thyroid! I thought that you had to have a thyroid to function properly, since they control so many bodily functions! That is great that you can live without one with the proper medical care! This was a great read! Thank you for the information!

Laura Haddock
Guest
Laura Haddock

I am 46 and I had stage 2 thyroid cancer in 2013. I actually got the news on my birthday. The thing that really shocked me is that they do not tell you what is going to happen to you after they remove your thyroid. It was basically you are cancer free, you need to get checked every few months to make sure the cancer does not come back in other places. So when they put me on Synthroid I thought great I am going to be back to normal. Oh no that is not the case. I have always… Read more »

Courtney
Guest
Courtney

Laura, like you I had to have mine removed due to multiple nodules. They just said I would have to get medication and that would take care of everything, since no longer would I have a thyroid. I didn’t question getting it removed although I did not have cancer- but they wanted to be sure so they took the whole gland out. It was messy- the doctor operated for three hours because there were so many nodules. That was four years ago. For the first year I went through drug tweaking- with levothroxin, then synthroid and then a combination of… Read more »

Josie
Guest
Josie

Hi, I had thyroid cancer Feb 2017, and had my thyroid removed. I went straight to 100 mcgs Levothyroxine the day of my surgery and I never skipped a beat! I had iodine radiation 2 months later and barely felt effects. I felt wonderful, like myself I was working out 5 days a week again and thought wow I guess I beat cancer and I’m back to normal…. right after my radiation treatment my endocrinologist said I had to adjust my meds to 112mcg based on blood work. About 1 week later I was waking up to a double shot… Read more »

Janine jimenez
Guest
Janine jimenez

Hello! I had a thyroid storm that made my numbers top over 400. So I opt to have my thyroid out due to all the craziness that was happening to my body. But, I’m confused about taking a lower dose. I was under the impression that you need a higher dosage to survive! I wanted to add that I have no energy! It’s awful. My life changed completely. Looking to get my groove back. Very curious!

nenit
Guest
nenit

try cytomel 10mcg it really makes you happy and feels much better… i was on synthroid for 7months and side affects r so bad…. until i seen another dr and it was a god sent and his even a Christian dr. he just told me to take 10mcg cyotmel it only tayes 2 days and i felt energzed and feels much better until now. good luck and go bless keep praying

Carole
Guest

Nenit,
Can you send me the name of your doctor?

Amy
Guest
Amy

Have you also been diagnosed with Hashimoto’s Disease? Could that be what is effecting how you feel?

Carla
Guest
Carla

Courtney, I agree with you. I was diagnosed in 2005 at the age of 29 with Papillary Thyroid Cancer by a specialist in Italy and I live in N.J. It is now 2018 and I still don’t feel like who I once was and you’re right these physicians no matter how great, just do not understand. I used to work out 6 days a week, I was a real road runner and now it’s Blah Nation. When they took out the cancer no one prepared me for the aftermath, no one said the radiation treatment could weaken my heart and… Read more »

Peggy
Guest

I had Graves Disease and eventually the docs had to remove my thyroid. I was on Synthroid for about 14 years. I got neuropathy, autoimmune diseases, weight gain, etc. I found out about Naturthroid and had to fire my Endocrinologist. I found a doctor who would prescribe Naturthroid and my life changed drastically. I lost 30 pounds, my cholesterol dropped to normal, neuropathy went away, all autoimmune problems disappeared. There is a book every Thyroid patient needs to read. Stop The Thyroid Madness! It will change your life.
I got mine back.

Janette Strahl
Guest
Janette Strahl

How do you feel about radioactive iodine treatment after thyroidectomy?

Lisa
Guest
Lisa

Peggy, what time of autoimmune issues did you have ? I was born with out my thyroid gland and have been having issues as of recently. I figured it was just my anxiety causing some of my weird tilling in my hands

Carole Gray
Guest

Hi Peggy!
This is good news. Will you please send me the info about your doctor? I live near NJ.

BattyCancer
Guest
BattyCancer

Pretty typical doctors can’t explain much of anything if it’s not on the google….I actually had Endocrinologist Google my thyroid medication…..Reality is they know for majority of thyroidless people will gain weight along with body pains and they dont understand why ….I personally feel if your improperly medicated after surgery your doomed.

Christine Smith
Guest
Christine Smith

You just explained my life. I hear many stories like ours but I have not heard anything that helps. Have you had any improvement

Lala
Guest
Lala

Reading this. Is like looking in a mirror. I went from 120lbs to 200lbs. I can’t get it off no matter what I do. It has effected me not only physically but also emotionally and mentally. I don’t know what to do. I also had a full hysterectomy at age 23yrs old before I got Hurthel Cell Carcenomia Thyroid Cancer at age 33yrs old. So I have been thrown into Menopause very early in life due to cancer. And due to the Thyroid Cancer I am unable to take female hormone replacement for it. Can someone please help me on… Read more »

BattyCancer
Guest
BattyCancer

La la
Your not alone

BattyCancer
Guest
BattyCancer

La la, why can’t you take estrogen pills? Your young without estrogen after (hysterectomy) and now (Thyroidectomy) estrogen could help with bone loss

Karen Compton
Guest
Karen Compton

Oh my god ! This was written as if it has come from my own hand , I’m about to lose my career as a train driver because I still feel like this 4years after TT .. I have literally BEGGED my endo to put me on more T3 Because the best I felt post op was the immediate 3 months post surgery when I was on 60mg of T3 alone .. as long as blood results are within parameters they don’t care how shit you feel physically & mentally every single day !

Bob
Guest
Bob

Exactly. My doctor only tells me “You are right where I want you to be. Cut your portions and throw away the salt shaker”

BattyCancer
Guest
BattyCancer

Is he/she still your doctor? I’ve fired 4 Endos in 2 yrs.

Nadia
Guest
Nadia

I’ve been thinking about getting off Levothyroxine all together and just taking Cytomel. I had a total thyroidectomy almost two years ago and my energy has been so all over the place. Did you also have a total thyroidectomy and were you only taking the Cytomel, nothing else? And it helped? Right now I take 137 of Levo and 20 of Cytomel but I still feel totally off.

BattyCancer
Guest
BattyCancer

I don’t think you can just take T3 meds because you no longer have thyroid.

Tilly Adriana Mathilde (Tilly) Dunn-van Vierssen T
Guest

Hi Laura, Forgive yourself for the emotions you are having and for your imperfect body. I gained the 80 pounds that were so painfully released before the thyroidectomy. Make the most of every day you have. Go to a Rheumatologist who can put you on a long term Vit. D (once a week). Look for what you can be grateful for. Personally, my being an emotional person is who I am. Meditation, aromatherapy, music therapy really help me. God Bless You. xoxox Love, Tilly Dunn.

Mrs. Benson
Guest
Mrs. Benson

Yes!!! I agree! No one prepares you for this. I wasn’t told before the surgery that I would be on hormone replacements for the rest of my life!! I had to get my thyroid removes because I was prescribed synthroid as a weight loss regimen and developed goiters and nodules…now I am on it for the rest of my life!!!! I try not to think about it because it’s so depressing! I’ve been without a thyroid for almost 15 years and it’s been a struggle ever since…i hate I ever went to that doctor!

kira
Guest
kira

I am 37 yo. Cancer free for 5.5 yrs. Same thing here. If its not one thing wrong, its another. I feel like i aged 20 yrs over night. On 188mcgs. Still feel like crap. They barely gave me time to handle the fact i had cancer let alone be aware of what all this meant. I feel cheated.

Elizabeth Rush
Guest
Elizabeth Rush

I have been on Thyroid meds for 9 years now. I have to have my thyroid removed next week. If it is cancer both removed. I’m wondering will I gain more weight now, MY weight goes up and down.

Grace
Guest
Grace

Elizabeth, weight gain seems to be and individual thing but, most often sadly weight gain happens.

Amy
Guest
Amy

I have been on meds for 24 years and having my thyroid removed at the end of this month. I just told I also have Hashimoto’s disease. I want to know how this will make me feel in addition to not having my thyroid (it will be removed completely if it the right nodule is cancer). Has anyone else had experience with this? My weight began creeping up over the past 3 years and just hasn’t stopped. I know know why. I’m hoping after the surgery, following a Hashimoto’s diet, I can begin taking the weight off.

Cynthia
Guest
Cynthia

Don’t do it!!! Read on all healthy ways to heal thyroid… I had mine removed your never the same and not in a good way

Milu
Member
Milu

I had my thyroid removed 2. Months ago they gave me the radiation pill than syntroid and I still feel terrible. There are really no good endos in Louisiana and instead of gaining weight I keep losing it but the drs say that I have hypothyroidism now that I don’t have a thyroid because of the cancer. I just don’t know where to turn.

Lyla
Guest

I had my thryroid removed nine days ago after four days I felt like my chest was vibrating inside my chest and stomach. Made me uneasy and I found nothing on line. I take Nature Thyoid so I took more. live in a small town and there isn’t any thyroid doctors here.

Tania
Guest
Tania

When I would feel the vibration in my chest usually I needed a dosage increase. I used to be on Armour but I couldn’t tolerate it. I felt out of breath all the time, cool feelings in my scalp like waves of almost passing out and vibrations in my chest/stomach. My endocrinologist then switched me to Levoxyl (couldn’t tolerate Synthroid or Tirosint) and Cytomel (T3) and I can’t thank him enough!! I felt as normal again as I could before surgery. I’ve been on this regimen for about 3 years now and don’t ever want to change. I’ve been without… Read more »

Mel
Guest
Mel

I had thyroid cancer and had my thyroid removed 3.5 years ago. I have been on levothyroxine ever since. Started on 100 MCG and now I am at 88.8 MCG. I recently stopped taking my meds because I never wanted to take them in the first place. I always wanted to go a more natural route. Every now and then I go off my meds for a few days and I never noticed a difference. I feel like I have more energy and actually sleep a lot better. Has anyone else had bad side effects being off your meds?

Glenda
Guest
Glenda

Had my thyroid removed early 2000’s because of goiters, I begged the Dr. not to take my thyroid out, but the old time Dr. told me we always take it out. Looking back I have been very lucky not to have had some of the problems I am reading about. I was started on Synthroid but was put on levothyroxine with good success, however lately my numbers have been a little wacky, one test is high another reads as low, playing with my meds right now. Overall, still very high energy with very busy days, maybe to busy to notice… Read more »

Dawnmarie Brennan
Guest
Dawnmarie Brennan

I read you message and after hearing so many horror stories it was nice to see yours. I have started on a low low carb diet to get ready for them to take my thyroid out it has helped with feeling amazing and losing weight. If you look at the site Diet Doctor I found some really great advice and videos on low carb high fat diets . Thank you for sharing. Dawn from OZ

Christine
Guest
Christine

How are you now Dawn ? Christine from OZ

Milu
Member
Milu

I have no energy an d keep losing weight I don’t think my surgeon got all the cancer when he removed my thyroid and now I have trouble with high parathyroid levels which deplete my bones kidneys of calcium I don’t know what to do

Wez Lee
Guest
Wez Lee

Hi all I have thyroid cancer don’t no stage but had left side removed and now having right side so will have no thyroid what is life like without it etc and got told I got to have thyroxin for life anyone no much.
Cheerz

Lorna
Guest
Lorna

Hi I had my thyroid removed because of thyroid cancer 5 and half years ago and have never been the same I am always sick every few weeks ,I have artrightis now and asthma but the worst thing is always feeling tired and sicky some days would really get you down but thank god cancer did not spread and I’m alive that’s the best part xx

Jen
Guest
Jen

I am 32 and I was born without a thyroid. Life has been very hard because of it. I have been over weight my whole life and due to my mother not educating herself on what I would need done because I don’t have a thyroid, there were months when i was growing up that i didn’t have any medicine to take for it ad i think that effected me a great deal. I have lost weight then gained then lost then gained and 3 years ago (April 2015) I had my 2nd little girl and I lost weight while… Read more »

Tania
Guest
Tania

I’m so very sorry to hear of all the sad things going on in your life. My condolences on losing your dad. Stress will make your thyroid levels go nuts. I lost my brother a year ago and had trouble getting my levels regulated again. You can look into this diet called The Whole 30. It’s actually excellent for people without a thyroid. I lost 20 lbs the first month on the diet. You’ll need to make sure your thyroid levels are in range, try to stop smoking and start with simple destressing exercises like walking, yoga or pilates. I… Read more »

Elaine Grace
Guest
Elaine Grace

I think it’s interesting that persons without a thyroid are considered one in the same as a person with Hypothyroidism. Certainly, we both live with some over lapping symptoms of Hypothyroidism. However, it seems that those without a thyroid not only deal with Hypothyroidism, we also deal with the condition and/or cause of our thyroidectomy. In some cases, this means a person not only is hypothyroid due to her thyroidectomy, he/she also has reoccurring thyroid cancer or an auto immune disorder like Hashimoto a or Graves’ disease. Just because our thyroid is removed, it doesn’t mean the underlying conditions are… Read more »

Grace
Guest
Grace

True enough. I had thyroidectomy for cancer and I feel my healthy self disappearing I’ve had nothing but one tendon pain after another for the past 16 months and Endocrinologist (accountants )who could careless now that I’m adjusting to my medication and feeling ok the accountant want to lower my meds again…..never going to happen my numbers are in range according to blood results…..if it’s not broke don’t fix it.!

Elaine Grace
Guest
Elaine Grace

I think it’s interesting that this article makes it sound like Endos and other health care professionals acknowledge the significance of Hypothyroidism or life without a thyroid, including the necessary tests and treatments required for optimal T4 and T3 hormone levels. It’s been my experience (song with the tens of thousands of others online) that most of us are dismissed and referred to other specialists. Endos rarely test for anything besides TSH. If and when they do test T4, T3, RT3, etc it’s becaise we’ve begged them or demanded it. Also, typically Endos and primary care providers only prescribe Synthroid… Read more »

Lori
Guest
Lori

AMEN! Lets be honest to help others = do not let your thyroid be removed if you can prevent it at all!!

Krizz
Guest
Krizz

Im Krizz, 44 yrs old, im not hypo or hyper but i have multiple nodules in my thyroid gland and my doctor told me that i should undergo thyroidectomy to prevent cancer and have proper treatment… I know the importance of thyroid gland in our body thats why it made me think…think and think…now still undecided… But reading your post and comments here contributed a lot to me..it will help me decide later what to do… For now i just wanna talk and hear more from those without thyroid,,, how is life without a thyroid???

Anne
Guest

Hi Krizz, If oyu can, avoid it and read as much as you can about the righ food for thyroid (there are many you can find even in libraries). Once you don’t have a thyroid, your body has a hard time regulating everything else in your body (hard to have energy, weight gain, depression and a lot more as the list goes in this great article). I was told to take it out and regret it, even if they found a cancer in it, because it is now said that may of the thyroid cancers even when not bening, are… Read more »

Maggie
Guest
Maggie

Hi Anne, I’m really interested in finding out if it’s possible to shrink nodules with diet, as I have a 3cm nodule that is starting to affect my windpipe and I can feel it when I swallow. I’ve been vegetarian most of my life and vegàn in recent years. I’ll do everything I can to avoid losing my Thyroid. Thank you to everyone who has posted such important information about the reality of living without this gland. I’m awaiting the results of the fine needle biopsy and hope for the best there, but I will likely not have it removed… Read more »

Stacy
Guest
Stacy

Maggie,
Did you have your thyroid removed. I have a 4.1 on my thyroid and in being told I have to have it removed and I’ll feel better. Not to worry about medication as they will give me the right dose. I’m super nervous. I was told it can start affecting my parathyroid.. what do i do.

Marg 1
Guest
Marg 1

Join the discussion…

Patricia
Guest
Patricia

Hi Krizz, I’m 46 years old and was 44 yrs old when I had my thyroid removed. I had no other choice as it had been growing for approx 13 years of which I was unaware until one evening I felt like I was chocking on chicken breast. Upon having tests they found how huge my thyroid was and was growing every day. It was causing deviation and twisting in my esophagus and wind pipe. Eventually I was finding hard to eat anything solid and breath as my thyroid was growing so fast. I had biopsies done to check for… Read more »

Susan Foley
Guest
Susan Foley

Thank you Patricia! Your story really helped me. I had my thyroid removed for the same reasons. I’m 59 and very weight conscious. I was worried I would gain weight. It’s only been 2 weeks since the thyroidectomy so I don’t know yet how taking replacement hormones will make me feel.

Shaunda
Guest
Shaunda

Trust me if you have nodules that will turn into cancer it can choke you stop you from breathing . I’m glad I had mines removed. You can live without a thyroid I’ve done so much research on it. When your thyroid acts up you’re iodine sufficient. God, bless you all!! I’m on 150 Lv I have gained a 100 pounds hair still haven’t growed back but I rather go through this than cancer.

Darci Chew
Guest
Darci Chew

I am 48 years old–had full thyroidectomy 4 months ago, after being diagnosed with Graves Disease (Hyperthyroid). I still do not feel good and we are tweaking synthroid yet again -right now on 100 (was on 112). However, body symptoms are still: hair loss, numb and tingling hands and arms, depression, lethargy, tired, mental health issues of just feeling bad-hopeless, emotional, moody, anger etc. I am sure you have all felt these as well. I had a horrible year last year before actual surgery. It took a long time to pin point what was going on. I don’t think most… Read more »

Crystal
Guest
Crystal

When my hands or legs tingle i check my calcium and vitamin D If i take it regularly everyday the time goes stop. My neck and half my face on left side still tingle, my right side is almost back to normal. After two years June 2016 i had my entire thyroid removed and 88 lymph nodes in a nine hour surgery. If i had to do it again i would have said No. One side was cancer… The middle, left side and lympnodes probably could have been left alone. But i did tell her do it all so i… Read more »

Ramona
Guest
Ramona

Hi, I am 46 and I’ve accidentally discovered 7 months ago, after a flue, that I have 2 thyroid nodules (3 cm and 1 cm) and Hashimoto disease. My TSH was very low (0.06) and the endo prescribed me thyrozol to stabilize TSH and recommended without any hesitation full thyroidectomy. I took thyrozol as prescribed and started to feel very bad, palpitations and panic attacks like symptoms started, after 3 weeks on thyrozol I got to ER exactly on my 46th birthday anniversary. My heart started to go crazy, I felt like I’m dying, my muscle were trembling. AT ER… Read more »

Tonya
Guest
Tonya

I went to see my MD about pain in my neck. She felt around and said she felt some lumps and sent me for an ultrasound. Several nodules were found on my US but since my numbers were “normal” she advised me to see an Endocrinologist in 6 mths to re-evaluate. In the meantime the pain continued as well as problems swallowing. Waking at night feeling like I’m choking. At my consult w the endo she performed another US and decided at that moment to do a fine needle biopsy since one of the nodules was quite large. Well, the… Read more »

Ramona
Guest
Ramona

Hi Tonya, how were the results after your surgical consult? I am quite in a similar situation, not sure if I should do the full-thyroidectomy as the doctors recommend, or not. Good health and all the best!

Bob
Guest
Bob

Not too many doctors look at the Thyroid, they usually check the heart and lungs first. I too had the “brain fog”, zero energy, and it felt like I was always wearing a very tight turtleneck. During a CAT scan on my lungs, the tech passed the machine up to my neck and discovered something on my thyroid. An ultrasound found a 4cm nodule on one lobe. They did a biopsy and discovered it was cancerous. Once I had surgery to remove the nodule and one side (and the flap), i was put on 75mcg of synthroid. Over the next… Read more »

Lori
Guest
Lori

I have no thyroid due to cancer and cant find decent doctor in my area. Going on 4th attempt and getting lost in hospital staff incompetence every time I try. Do I really need this hormone and what happens if i quit cold turkey?

Jennifer Zahari
Guest
Jennifer Zahari

I had a complete thyroidectomy 5 years ago after learning of a 4cm tumor in my thyroid. The first couple years was tough getting my meds on track but got to a good level at 150mcg and a 5 day dose of an extra .25mcg. The next couple years was steady, felt good at the levels but the last 9-10 months has been all down hill with extreme fatigue, muscle and joint pain, and overall not feeling good. My new Endocrinologist is moving me from Levo (which has been for 5 years) to synthroid which I have not had in… Read more »

Janice
Guest
Janice

I am hypothyroid I had a total thyroidectomy due to cancer 8 yrs ago and my labs keep coming back high 7.1 to be exact I am on 200mcg daily I take my levothyroxine every morning and Waite 2 hrs before eating not sure how to get feeling better this has happened to me before where I had to get injections of thyrogyn No one seems to pin point how to help me.

Annette
Guest

I’ve had Hashimoto’s for about 20 years. I also have chronic severe insomnia. I have been unable to sleep without sedation for 28 years. I always thought it was the thyroid’s fault but when I read this page and see how people get tired and sleep excessively with hypothyroid I wonder if the insomnia has another source. Any other hypothyroids out there with insomnia?

Dynisha Gleeton
Guest
Dynisha Gleeton

I have hypothyroidism and my calestorol is high and the doctor won’t give me calestorol medication so how can I lower my calestorol and what food can i eat

VALORIE M HOBSON
Guest
VALORIE M HOBSON

I had my thyroid removed & cannot seem to find a way to regulate my body temperature successfully. I take levothyroxine 50mcg now (previously 100) & I have heavy facial & upper body sweating when no one else is – quite embarrassing – any suggestions before I go back to endocrinologist? Some articles say excessive sweating comes with too much medication & others say it comes from too little. Thanks.

Tracee
Guest
Tracee

This is me also, no one seems to help. I feel like i don’t know who i am anymore. 9 months post total thyroidectomy has been the worst days of my life. Constant headache, bloody sweats, feeling cold even when it’s 34°C, dizziness, lack of energy. I felt like i should kept my benign nodule even of it was big, at least my body functioned normal .

jan robertson
Guest
jan robertson

I agree totally! If you can possibly keep your thyroid-KEEP IT. Had mine out 12 years ago and have not been normal since. vomiting, digestion issues, hot/cold temps, fainting, palpitations – you name it. And drs not really interested in helping.

Vicki
Guest
Vicki

I so feel you Tracee. On top of the other side affects from the thyroid being removed…. sweats…. it was so bad at a recent appointment with my ophthalmologist, along with dizziness that he called an ambulance as he thought I was having a heart attack!! I would definitely have kept the tumors and thyroid had I known what I know now!

Patty
Guest
Patty

i had my thyroid out due to stage 3 cancer in June 2016. I am on 175 levy. its been a nightmare. I had high blood pressure prior to my removal and now I have diabetes, cholesterol, fatty liver disease and i feel its all related to having my thyroid removed.Im tired all the time but have trouble falling a sleep, i need to take calcium and vitamin d. Now i have something going on with my pancreas, seeing GI Dr. tomorrow. Any one else having all these issues?

Vicki
Guest
Vicki

I had my whole thyroid removed due to 6 tumors growing on it. Nothing wrong with the thyroid itself though. Since the surgery I am on Vit D…. was talking Calcium as I couldn’t feel my hands for nearly a week. My voice hasn’t returned to normal. I have the same monotone and can’t call out loud or scream. I am fatigued beyond anything I’ve ever felt. I have put on 8 kilos since surgery. I take 150mg Levy. They recently thought I had a heart attack but after discharging myself from the RMH as they were incompetent and too… Read more »

Sharon
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Sharon

I had to have my thyroid removed in 2010 due to nodules and goiter. I found out 2 days later that my parathyroid was also removed. Was not intended to be removed but doctor said it was too entangled to separate. I am on synthroid, calcium, magnesium and prescription vitamin D and will be for the rest of my life. I have my good days and bad days and I’m not sure if it’s related but probably is. No one has told me what to expect with not having a parathyroid other than having to take calcium, magnesium and vitamin… Read more »

Marg 1
Guest
Marg 1

You should have 4 parathroid gland 2 on each side.on each side were they all removed? Having 1 or 2 left should be enough to help regulate your calcium. Look uo parathyroid glands to see where they are located.

Sharon
Guest
Sharon

I have none. They were all removed

Vicki
Guest
Vicki

I had mine removed when they removed my thyroid. I had no issues with my thyroid other than it had 6 massive tumors growing on it. After the surgery on day 3 I had the worst pins and needles in my hands and up my arms and I was told to increase my calcium tablets as my body was trying to adjust to being without the parathyroids. It settled down after about 4 days…. and I haven’t had an issue with that since. I am constantly tired. Can’t get out of bed…. fatigued beyond a joke….. have put on 8… Read more »

Frances
Guest
Frances

I had a hysterectomy back in November 2017 and was left with only my ovaries. I felt like my world had literally fell apart, considering I had already under went a complete thyrodectomy in 2007 and another thyroid surgery in 2015 because they discovered abnormalities growing in my throat where my thyroid use to be luckly that was good news, nothing but thyroid tissue, they removed it and all is well. I just received my 3rd set of bloodwork since my Hysterectomy and now my TSH is at 6.821 and T3 and T4 are low. The nurse called and said… Read more »

Gillian
Guest
Gillian

I was born in Dundee Scotland I was caught at an early age I am fine now and have a great job, I take one tablet a day for life I have a blood test every year

When I was younger going through school I was one 3 Till a cleaver Doctor descoved I was one to many school was a struggle but maths was the toughest but never looked back since then

Gillian
Guest
Gillian

Opps I missed some words but have just noticed sorry about that

Lori
Guest
Lori

I need more info..i had my thyroid removed 5 weeks ago and i am sooo tired all the time

Sherry
Guest
Sherry

thyroid remove due to thyroid cancer. the only thing that changed was me taking levothyroxine every morning. no diet restrictions, mood is great (i have chronic depression and anxiety, have been taking antidep & antipsych before being dx with thyroid cancer), etc.

lucy
Guest

My thyroid was removed in 2012 after it became hypo and from that time to date i am on 100mg Eltroxin table-let and 75mg levothyroxine tablet alternate at 6am daily. due to the major operation that was done to my neck, my sleeping style has changed because I have to sleep with my head a bit high coz oxygen and blood flow to the brain is not sufficeint when I sleep flat. I have lost alot of weight and most of the times get sweats every now and then and i have become vulnerable to loss of immiunity. During the… Read more »

tfg
Guest
tfg

AM EVE, THANKS TO DR ONIHA WHO CURED ME OF FIBROID THAT ALMOST COST ME MY MARRIAGE,
MY HUSBAND AND I DISCOVERED THAT I HAVE MULTIPLE FIBROID SEVEN WEEKS AFTER OUR WELDING,
THE GYNA ADVICES ME TO GO FOR A FIBROID OPERATION, BUT A FRIEND OF MY INSIST THAT I SHOULDNT DO THAT, BECAUSE IS DANGERIOUS,
SHE RECOMMENDED DR ONIHA HERBAL MEDICATION TO US, WHICH WE MAKE USE OF, WITHIN A MONTH AND THREE WEEKS, THE HERBAL MEDICATION SHRINK THE FIBROID, AND I WAS ABLE TO GRT PREGNANT.
IN CASE YOU HAVE SIMILAR PROBLEM, YOU CAN ALSO REACH THE DOCTOR ON +2347089275769 OR EMAIL:DRONIHASPEL@YAHOO.COM

DERA
Guest
DERA

AM EVE, THANKS TO DR ONIHA WHO CURED ME OF FIBROID THAT ALMOST COST ME MY MARRIAGE,
MY HUSBAND AND I DISCOVERED THAT I HAVE MULTIPLE FIBROID SEVEN WEEKS AFTER OUR WELDING,
THE GYNA ADVICES ME TO GO FOR A FIBROID OPERATION, BUT A FRIEND OF MY INSIST THAT I SHOULDNT DO THAT, BECAUSE IS DANGERIOUS,
SHE RECOMMENDED DR ONIHA HERBAL MEDICATION TO US, WHICH WE MAKE USE OF, WITHIN A MONTH AND THREE WEEKS, THE HERBAL MEDICATION SHRINK THE FIBROID, AND I WAS ABLE TO GRT PREGNANT.
IN CASE YOU HAVE SIMILAR PROBLEM, YOU CAN ALSO REACH THE DOCTOR ON +2347089275769 OR EMAIL:DRONIHASPEL@YAHOO.COM

Helen
Guest
Helen

I’m due to have complete Thyroid out on 1st Aug due to hyperthyroidism, Graves’ disease & goitre. Reading all these comments has really made me rethink the surgery. Has anyone had a good experience after surgery? I have a 5yo, 3yo and 7month baby – worried about how I will cope if feeling so low for a long time. Any advise?

Adrienne
Guest
Adrienne

I had a complete thyroodectomy in 2003 due to cancer and a second operation in 2005 to remove additional cancerous lymphnodes. My son was 3 at the time. I Have been taking synthroid ever since and have had s fairly normal life. I have moved several times and have done research to find a good endocrinologist who specializes in Thyroid. The last few years my primary care has me taking Vitsmin D and I can definitely tell the difference when I take it. I have always taken synthroid. I have gained weight over the years and recently discovered Whole30. I… Read more »

Eva
Guest
Eva

Hi Adrienne, my name is Eva and I’m from Australia. Thank you for sharing your story. I checked out Whole30 and will definately give it a go! My story was posted yesturday. Hope all is well.

Chris Blyseth
Guest
Chris Blyseth

See my post from earlier today. My case is unusual. Being somone who does not convert T4 (Synthroid) well makes hormone replacement tricky. If this were to happen to you, im afraid your life would be miserable trying to keep up with family demands. Knowing what i do now, i might have done things differently. I would have asked about the possibility to keep some small percentage of my thyroid along with replacement hormones. If i knew i was a poor T4 converter beforehand, the other option would have been to stay on thyroid suppressing meds for a while and… Read more »

Gee
Guest
Gee

Helen, I wish i had someone to tell me what I’m about to tell you before I had my thyroidectomy. If i were you, i would take 30-60 days and change to the AIP diet. You basically eat ONLY organic veggies, fruit and meat. Remove all processed things from your diet. Don’t microwave things in plastic. Use baking soda as toothepaste etc. Basically remove all chemicals from your diet and reset your intestinal balance. Then, retest your thyroid levels after the 30-60 days to see if there is an improvement. I had a standard American diet, didn’t care about what… Read more »

Chris Blyseth
Guest
Chris Blyseth

I highly second the AIP diet approach after now dealing with other family members with autoimmune issues. Wish I had known this.

Eva
Guest
Eva

I have been doing AIP for 2 months now and definately feel better. If I had known AIP before TT I may have been able to avoid TT. My endo appt is in early Oct so fingers crossed I’m all clear!!

Josee
Guest
Josee

Can I go 20 days without.my levothyroxine

Chris Blyseth
Guest
Chris Blyseth

Great article pointing out there is such a difference without a thyroid for some people. After Graves and thyroid ablation I’ve never been the same. High functioning zombie. Being a poor T4 converter, I do better on a higher ratio of T3 to T4. Too much T4 and then excess rT3 clogs my T3 receptors – like not taking any meds. Turns out i am celiac so being gluten free helps my meds absorb more consistently. So i am better than the first 3 years without thyroid but nowhere near the same. I disagree with the statement: “However, when one… Read more »

Janine
Guest
Janine

I am 5 weeks post total thyroidectomy. How will I know if I need to add T3?

michelle brown
Guest
michelle brown

My daughter had surgery in May.
She is so unbelievably mean now.
What is wrong and how does she treat it?

Laura Mayo
Guest
Laura Mayo

I had Graves disease since I was 16. I’m 56 now, 7 years ago my through was removed because of nodules on then. There was no cancer. My last blood test was about 2 months ago. I was on 115 once a day. My test came out hyper and needed to lower it. I was finally waking early, sleeping and enjoying things, before, I slept from 10 pm till 3 pm. I was always tired, I gained 20 lbs. They put me on the 115 and it was great. So they put me on 100, I’m now tired again all… Read more »

Deborah Bennett
Guest
Deborah Bennett

I have had my thyroid removed now for 4 years. I have never had my thyroid levels as they should be. They are either to high or way to low. I am taking the generic of synthroid. Is it normal for it to take so long to get them regulated?After the thyroid is removed am I considered not to have hashimotos any longer.

Rene
Guest
Rene

I was about to turn 45yo, I had just worked really hard to lose 85 pounds, looked great, took up running, loved my job, was relatively happy with my life. Went to the Doc for my yearly and she told me my thyroid felt “full”. She sent me for an US which showed a nodule, and that led to a biopsy. On 9/1/17 I was told I had medullary thyroid cancer. I spent the next month going for tests and visiting docs. On 10/3/17 I had a complete thyroidectomy. They got all the cancer and it appeared to not have… Read more »

Tom
Guest
Tom

Hang in there Rene! My wife changed our diet and we are on lower carb. Like you, I’ve noticed unwanted weight gain as well as sluggishness. Try to walk a bit more if you can. As for laughing, I know what you mean. I’m trying to watch more comedies and trying to steer clear of news channels. After my thyroidectomy, I noticed I lose my voice if I yell or talk too much. I also noticed, at least for me, I seem to sweat more… it’s uncomfortable and embarrassing.

You’re not alone Rene! We’re here for ya!
Tom

Tom
Guest
Tom

I know there are those without a thyroid who are sensitive to the cold, but, I seem to be sweating more. I also lose my voice when I yell (usually means my wife wins if we argue… lol). Is this unusual?

marjorie
Guest
marjorie

so I was told the T4 does not need to be checked. in this past year my doctor has changed my thyroid meds I about 5 – 5 times. I am struggling depression and needs somewhat to help me. my work is starting become affected and I just want to be steady for a while..

MsTique
Guest
MsTique

I am having the surgery Monday 3 September. I have had a massive tumor on my right side of my throat / thyroid and 5 more tumors have grown since. For 8 years the “top” Professor was watching it, then 2 months before my wedding said he was ready to remove it…. I told him no… I wanted to get married without a scar. I waited and a couple of weeks ago told my dr I was ready (have had a brain tumor and that surgery went terribly wrong).. so scared of surgery. The Professor has retired. Have been sent… Read more »

PATTY NICOLAS
Guest
PATTY NICOLAS

LOOKING FOR REASONS WHY AFTER ALMOST 4 YEARS SINCE TOTAL THYROID REMOVED SYNTHETIC MEDS STOPPED WORKING AND NUMBERS WENT TO THE LOWEST LINE ON THE CHART TO SAY NOTHING OF HOW I FELT. WHY DOES HAPPEN AND HOW TO PREVENT AGAIN????

Eva
Guest
Eva

I was diagnosed with papillary carcinoma (thyroid cancer). Had total thyroidectomy in 2015. 2016, less then 6 month later they found more “suspicious” nodules had my second operation. 2017 after a Routine check….yup they found more so was operated on for the 3rd time! My next check up is December and I am feeling very very anxious about it. My dose had been steady from the beginning but Drs are suprised at how quickly recurrent is. My biggest worry is my daughter who is 11. She seems to have a “full” looking neck, no health problems seems happy but the… Read more »

Kerry Graves
Guest
Kerry Graves

I have no thyroid due to removal several years ago and I’m taking ndt. I struggle with low mood, fatigue, achy joints and brain fog, but the doctors are not interested. What next ?

Wayne
Guest
Wayne

Does thyroid affect having a child male/female

Tina
Guest
Tina

I have 4 children. 1 born before thyroid removal and 3 after. I have lived 49 years without a thyroid.

BattyCancer
Guest
BattyCancer

Hardest part of losing my thyroid to cancer has been the the massive body pains so bad in fact Ive been house bound for 2 yrs and the weight gain that the Endocrinologist s say has nothing to do with losing your thyroid or being under medicated “Bull” Delusional liars, they love to make you feel like every ounce you gain is something your doing…..liars. Before I became crippled I was a fitness instructor, marathon runner, weight lifter and a I walked 5-10 mile a day I walked everywhere and inspite of all this exercise I was also working with… Read more »

Frank
Guest
Frank

just wanted to read what my life maybe like now that I am without a second body organ Thyroid.

Terry R. Norris
Guest
Terry R. Norris

My name is Terry as one that had the thyroid removed at age 10 54 years ago I can say with confidence that I have been treated as if My condition was unimportant by all the medical community which has been extensive a private air plane crash 2 broken legs 2 heart attacks and thus far a life of continuous drudgery

Julie
Guest
Julie

So, my mother had her thyroid removed at least 50 years ago. Now the Dr. is saying her thyroid is too high, so they are lowering the medication. She says she feels the same way that she did when her thyroid was too high before it was removed. I know years ago, she was also diagnosed with an overactive pituitary gland as well I think. I’m wondering if she should go see a specialist, because I can tell that she everything seems to be grating on her nerves and to me she has been acting very impatient, extremely impatient.

Makenna
Guest
Makenna

This article was very informational. I love learning about the thyroid gland and how much it impacts the human body. My name is Makenna, I am 23 years old, and I was born without a thyroid. Growing up, I really never understood what a thyroid was, or what it meant when I told people that I didn’t have one. I just needed to go in every 6 months to a year to get my blood drawn to check my levels…but my doctors did a great job of keeping my levels on track. Once I hit my teen years, I stared… Read more »

Elizabeth
Guest
Elizabeth

Very good article as well as the linked topics. Unfortunately the information has added confusion. Add T3? Leptin resistant? My thyroid was removed 10 years ago because of cancer and I’ve never been the same. With the exception of a couple of the above symptoms, I struggle with all of the other symptoms listed. My internist and endocrinologist work together but it seems symptoms are treated – depression, obesity, fatigue, overall joint/muscle pain and weakness, no energy, sleep too much, overall sweating after 10 minutes of activity – without finding the true cause. Full thyroid panels are taken every three… Read more »

june
Guest
june

This was the best information I have found yet about individuals who have had a thyroid removal. I have all the negative symptoms of hypothyroidism and am only receiving T4. I am now aware of the need for T3 also.

miranda
Guest
miranda

Thank all of u for the personal information. I don’t ‘ve a thyroid for nine years now due to cancer and my life is not easy….The strange thing is that here in my country everybody says and specially the doctors that living with the pill is the same thing ….Well is not!!!! I ‘ve almost all the symptoms were written above like fatigue, problems with concentration, memory loss , I ‘ve depression sometimes my iron is no good, I get sick easily and take time to recover……….As years pass by I have more problems….I would like to be prepared and… Read more »

Abby
Guest
Abby

If we can only predict what will be the effect in each lives after surgery, it will help us to go tbe right decision. May God help us all…

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